Sources of Information Slide 13 of 29

Go to slide: 1: "Public Health Challenges for Parkinson's Disease in the US" 2: Context and Goals 3: US Health Care System 4: PD Organizations in the US 5: Political Strength 6: NIH PD Research Agenda 7: Public Health Action Plan for PD 8: Public Health Concept 9: Scientific Tools of Public Health 10: Emphasis on Prevention 11: Literature Review on 12: Current Public Health 13: Sources of Information 14: Costs of Parkinson’s Disease 15: Cost and Resource Use 16: PD Use of Services 17: Elevated Comorbidities with PD 18: Costs of Parkinson’s Disease 19: Physician Care 20: Access to Comprehensive Care 21: PDF Access Survey 22: Access to Specialty Physician Services 23: Specialty Physician Care 24: Use of Comprehensive Services 25: Access to Comprehensive Care 26: Summary of Findings 27: Challenges for Public health 28: Focus on Quality 29: A True Mover and Shaker

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Public Health Issues in the USA, Sources of Information... QuADPaC was initiated to fill the void in information about health services for PD. QuADPaC Research -- ** Review of Literature and Status Report -- conducted by staff ** PDF “Access Survey” - conducted by staff ** Cost and Resourse Use Study -- by Sergievsky Center, Columbia University - Dr Joyce Pressley and others Government sponsored research - instigated by QuADPaC ** Evidence Based Review -- At the request of the US House Appropriations Committee, the Federal Agency on Healthcare Research & Quality funded an EBR that builds on the work of the MDS..conducted by one of 12 EBR centers under contract with the agency. .. Metaworks in Boston ** PD Questions on National Health Surveys In the past PD was rarely addressed in data collection. part of invisibility. Task force has convened to work on adding questions to NHANES and NHIS. The question "have you ever been told by a doctor that you have Parkinson's Disease?" appeared as a supplemental question to the NHIS in 1999. This is an annual survey of 40,000 households. This is a start at estimating prevalence. It of course misses many undiagnosed or misdiagnosed.

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